Sickle Cell Disease
Sickle cell disease (SCD) is a red blood cell disease, a complex inherited disorder with multisystem manifestations that requires specialized comprehensive care to achieve an optimal outcome. Appropriate treatment requires the active involvement of health care professionals with expertise in the management and treatment of SCD working in c with a multidisciplinary team, a ‘Medical Home’. The most appropriate medical home is a multidisciplinary sickle cell clinic that coordinates all aspects of comprehensive care in collaboration with the primary care providers. In other cases, the medical home may be provided by a knowledgeable primary care provider or other health care professional from whom patients receive day-to-day care, with periodic referrals to sickle cell specialists for comprehensive evaluations and for the management and treatment of severe, life-threatening complications.
# 603903 SICKLE CELL ANEMIA
ORPHA 232
June 2017 Soroya Beacher, Oscar Netherlands
As chairman of the sickle cell organization in the Netherlands, a trained ICU nurse, and nurse tutor this has given...
- Acute chest syndrome
- Hemochromatosis
- Hemoglobinopathies
- Splenomegaly in hemoglobinopathies
- Vaso-occlusive crisis
