Bardet-Biedl Syndroom (BBS)
De website is gestart door de Stichting die in juni 2017 is opgericht. De website is gemaakt door ouders voor iedereen met...
Supports individuals and families affected by GATAD2B-associated neurodevelopmental disorder (GAND), to increase awareness, and to work toward research and treatment...
June 2017 Sororya Beacher, Oscar Netherlands
As chairman of the sickle cell organization in the Netherlands, a trained ICU nurse, and nurse tutor this has given...
The patient organization www.laposa.nl provides information, support and advice. It is important that you receive proper care for yourself and / or your child. They...
Shwachman Syndrome Support Holland represents individuals with Shwachman Diamond Syndrome in the Netherlands. As most rare conditions Shwachman Diamond Syndrome is a complex disorder. First...
