Patients want control over their own health data

Organisations for rare diseases in the Netherlands are calling on Minister Kuipers to set up a digital network so that Dutch citizens have the opportunity to gain control over their own health data.

People with a (chronic) condition and/or disability must be able to trust that the government organizes a system that does justice to the primary goal of the EHDS (European Health Data Space).

Read more in the letter to Minister Kuipers and the members of the House of Representatives. (Sorry, just Dutch.)

https://rarecare.world/sites/default/files/2023-06/Brief_Visie_en_State…